Genetics, Disability, and Deafness
edited by John Vickrey Van Cleve, fl. 1999 (District of Columbia: Gallaudet University Press, 2004, originally published 2004), 241 page(s)
Details
- Abstract / Summary
- Pulitzer Prize-winning author Louis Menand begins this wide-ranging volume with an essay that extols diversity and warns of the dangers of modifying the human genome. Nora Groce reviews the ways that societies have defined disability and creates an interpretive framework for discussing the relationship between culture and disability.
In essays devoted to historical perspective, Brian H. Greenwald comments upon the real “toll” taken by A. G. Bell’s insistence upon oralism, while Joseph J. Murray weighs the nineteenth-century debate over whether deaf-deaf marriages should be encouraged. John S. Schuchman’s chilling account of deafness and eugenics in the Nazi era adds wrenching reinforcement to the impetus to include disabled people in genetics debates.
Mark Willis offers an intensely personal reflection on the complexities of genetic alteration, addressing both his heart condition and his blindness in surprisingly different ways. Anna Middleton extends Willis’s concepts in her discussion of couples currently considering the use of genetic knowledge and technology to select for or against a gene that causes deafness.
In the part on the science of genetics, Orit Dagan, Karen B. Avraham, Kathleen S. Arnos, and Arti Pandya clarify the choices presented by genetic engineering, and geneticist Walter E. Nance emphasizes the importance of science in offering individuals knowledge from which they can fashion their own decisions. In the concluding section, Christopher Krentz raises moral questions about the ever-continuing search for human perfection, and Michael Bérubé argues that disability should be considered democratically to ensure full participation of disabled people in all decisions that might affect them. - Field of Interest
- Disability Studies
- Copyright Message
- Copyright © 2004 Gallaudet University Press
- Content Type
- Book
- Duration
- 0 sec
- Warning: Contains explicit content
- No
- Format
- Text
- Original Publication Date
- 2004
- Page Count
- 241
- Publication Year
- 2004
- Publisher
- Gallaudet University Press
- Place Published / Released
- District of Columbia
- Subject
- Disability Studies, Diversity, Theory, Deafness, Disabled persons, Genetics, Theoretical Perspectives, History and Theory, Teoría, Teoria, Post-war Era (1945–1960), Late 20th Century (1975–2000), The Sixties (1960–1974), Depression & World War II (1929–1945), World War I & Jazz Age (1914–1928), The Gilded Age & Progressive Era (1876–1913), Reconstruction (1866–1876), Civil War (1860–1865), Early 21st Century United States (2001– )
- Keywords and Translated Subjects
- Theoretical Perspectives, History and Theory, Teoría, Teoria